In the past months I have learned the meaning of living in limbo. When one is ill it can be a stressful time while waiting for test results, sitting for hours in doctors office and feeling like crap. I have encountered a new problem. I have apparently developed a severe reaction to my seizure medication. I have very painful lesions on my tongue and sides of mouth. It is a living hell. Cannot eat too much and to talk is torture. I went to the regular doctor and they had put me on some sort of rinse which did not help. Today I called my dentist to see if they could resolve this issue. They looked and I gave them the whole nine yards of what has been happening. I noticed it a few weeks ago but thought I had bit my tongue or had a seizure in the night and this caused it. But.... it seems to have taken on a life of its own added to all the other issues. They came to the conclusion that it is an allergic reaction and since the only medicine I am taking is the seizure medication that will have to be removed first. This afternoon I went into my neurologist and he seemed miffed that his meds would cause a reaction. I am learning that some neurologist have big egos. He was not concerned and thought it was not the seizure medication. Well so what if I am in pain and this is one of the side effects you should at least me concerned and a bit more open-minded. Reluctantly he gave me some samples of a new anti-seizure medication to take while I wean off of the current one. It is quite a roller coaster that keeps going down. But this too shall pass. Where am I going? Oh yes the story about being in limbo.
While meditating in the evening and doing my damn best to get not notice the fire in my mouth I search for my true self, the eternal spirit within that remains bright, shining and painless. I accepted a long time ago that I am far from perfect. In these fragile bodies we all are very fragile. While we are here we cannot expect perfection but to continue on as the spirit is only leasing out this current body that is in an earthquake zone. I will be one step stronger for the experience.
And with this I leave you one of my favorite quotes.
"I know God will not give me anything I can't handle. I just wish
that He didn't trust me so much."
~ Mother Teresa
31 Enchantments:
Hmm... that's odd that a neurologist would be so hesitant on an AED being the culprit of the allergy. I'm on 3 different seizure medications right now and it took 7 years to find a combination that my body wouldn't react too severely too but I do get a bad skin rash to one of them but no too bad that I have to stop it. I combat the skin rash with a cortison-antibotic cream so I can stay on one of the seizure meds. So the 3 of the seizure meds I am on work well all together along with my asthma meds as well.
I hope that you may find relief soon... I can imagine it must be tough. Hang in there, my friend.
{Hug}
~Michele~
I am not at all familiar with medications or what you could do to ease the fire in your mouth. But perhaps to rinse from time to time your mouth cavity with warm water might give some relief. Or an infusion with some herbs.
But I pray very hard that you will find relief soon. And your spirit is so strong and positive, it will by all means help you also. And perhaps you will find a decent neuro man too?
I hope it all comes right for you real soon.
Sending you prayers from Calgary, asking God's Angels to come and give you a big hug and ease this problem you are having with reactions to your Meds.
HI, T!
I know what you mean. I really do! A couple of months ago, I was diagnosed with a benign (lucky me!) brain tumour (already removed) and went through a very difficult period, but I’m almost ok now.
Don’t worry too much, I know, from my own experience, that better days will come and I’ll pray for you, I promise.
Beautiful quote, in fact. That Woman was a Saint!
There's a Caption Contest going on at Apache. You're invited (you won the last one, remember?)
((((Get well hugs!))))
I'm not familiar either with those medications and I'm so sorry to hear about you don't feel great at all!
Have you thought also about changing your doctor, maybe? I know about doctors with very strong "ego's" - they think they never make mistakes!!!!
Hi T!
Oh what a pain honey, I do hope it goes away pronto! I hope you will be sitting in the sun smiling soon.
Hugs from California and the biggest get well wishes I could possibly send to you.
Love and Light,
Mon
That really is miserable, my mum has suffered for years, she discovered it's related to Celiac disease.
Take care of yourself
Oh Titania, honey, I am so sorry to hear about the anti-seizure medication side effects causing you such pain in your mouth.
The doctor sounds like a jerk, and it is hard because we trust them and they are so careless with their errors in judgement.
(hugs) to you, and *light* and I hope you feel a little bit better each day :)
Hi Tawnia! Sorry for the long delay in coming here, but the last two weeks were too hectic!
Wish you get rid of all those medications soon; it means you'll be OK!!
Loved the quote!~
Meanwhile enjoy Blogtrotter back to Greece!
Hope you have a great (and better) week!
Hello Michelle,
Thank you for sharing with me. I know that you totally understand what I am going through. It is tough when your body reacts in such a negative way. They really need to find a cure for epilepsy. The meds used for this condition have such serious side effects and yet we need to take them. Thanks again for being a great friend. :o)
((((((hugs))))
Hello Peter.
I have tried everything on my poor tongue. On an amusing note, my dentist gave me some type of paste to put on my tongue and it was a lot like Novcaine. It did the job but I couldn't talk for a good hour because my whole mouth was numb. My husband like it. I didn't! Ha ha ha ha ha ha!
I know it will all pass soon and it will be just a dim memory. :o)
Thanks for being my friend.
(((((hugs))))
Hello Jean-Luc,
Me too! Thanks for being here for me. :o)
Hello Bill,
Thank you so much dear friend for your prayers. I have been asking for relief also. I am sure there is a reason for all of this. Life is a big mystery and all the things we go through have a purpose. Even these tough ones.
((((((((hugs)))))))
Hello Cochise,
Sorry to hear you had to go through that. The waiting part is tough. Glad you are on the mend now and that everything came out good for you.
Glad you are back visiting again. You are a blessing. :o)
(((((hugs)))))
Hello Susanne,
I am indeed thinking of switching doctors. I think I have one with a very big ego! Too bad they forget the oath they took to help save lives. I guess for some it is all for the money and power. But they are human just like the rest of us.
Thanks for the positive get well wishes.
Hugs,
T.
Hey Mon!
So good to hear from you. You made my day. The sun finally came out today here in rainy Mississippi. And I went for a brisk walk and I was smiling. It did my spirit good.
Thanks for stopping by. Miss you!
Hugs,
T.
Hello Anji,
I have heard also that certain underlying diseases will cause so many reactions. Would you believe no one has done any blood work on me yet? Perhaps you are a messenger in disguise. Not that I think I have anything but that it may be a good idea to make sure all avenues are covered. I am beginning to realize that the patient is sometimes on the ball more then the doctors.
Thanks for stopping by.
Hugs!
Hi GMG,
I will be sure to stop by to visit Greece. I really enjoy my virtual vacations at your blog. :o)
Take care,
T.
Hello Annie,
Yes, doctors can be big jerks. As Susanne said they tend to have big egos. Thanks for the positive energy. You are very good at spreading light and love.
Hugs,
T.
I always try to do one thing when I am ill. I never stay in the bed and never think that I am ill. That gives me a lot of strength.
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Don’t worry too much, I know, from my own experience, that better days will come and I’ll pray for you, http://www.skincaretreated.com
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I am not at all familiar with medications or what you could do to ease the fire in your mouth. But perhaps to rinse from time to time your mouth cavity with warm water might give some relief.
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Rinse from time to time your mouth cavity with warm water might give some relief is the answer.
Blessed Xmas and Happy near year everyone!
or Try to eat honey! :D, That is my tip.
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